I'm here. No art. No art is like not breathing to me. It's like a part that's missing. I can't imagine losing an arm or leg, but it feels something similar when I get up and know that there will be no art today. None. It's miserable.
With Fibromyalga you don't even have the option of saying you'll work tomorrow. When you have a cold/flu you can always say, "I will work tomorrow." Whether you make it all day or not, doesn't seem important. The fact that you're in control of what you do and what you don't do gives you strength. Helps you to know this is not a forever thing.
That doesn't work with Fibro. Everyone I've talked to says to rest. Just rest and you'll feel better. I am here to tell you, it does not work. I have slept for the last 4 days, all day and all night. Besides potty breaks, food, and putting the dogs out, and an hour or two on the computer, I have been sleeping/resting. No reading, very little TV. I've slept until it hurts. And since it's Fibro, I have no control over it. None.
No control over my life is like living in hell to me. I'm normally a happy/upbeat/crazy person. I love to hear people laugh. Love to see how I can improve/fix things. All of that is worth getting up in the morning to me. But Fibromyalga is slowing eating all of that. After 8 to 10 hours of sleep, I wake dead tired and sleepy, not sure if I can walk. It's debilitating.
The worst side effect for me is the sleeping and being tired. That means no art. No cooking and asking friends over. When you make plans, you pray you'll be able you can actually go.
Enough whining and complaining from me. I can be depressing on my time, not yours.
If you follow my blog, thank you. I appreciate each and every one of you. Please know that if I haven't posted for a few days, it's not because I'm on vacation having fun. xoxxxx
Turn the handle, he'll peck the apple. My design, R built it.
With Fibromyalga you don't even have the option of saying you'll work tomorrow. When you have a cold/flu you can always say, "I will work tomorrow." Whether you make it all day or not, doesn't seem important. The fact that you're in control of what you do and what you don't do gives you strength. Helps you to know this is not a forever thing.
That doesn't work with Fibro. Everyone I've talked to says to rest. Just rest and you'll feel better. I am here to tell you, it does not work. I have slept for the last 4 days, all day and all night. Besides potty breaks, food, and putting the dogs out, and an hour or two on the computer, I have been sleeping/resting. No reading, very little TV. I've slept until it hurts. And since it's Fibro, I have no control over it. None.
No control over my life is like living in hell to me. I'm normally a happy/upbeat/crazy person. I love to hear people laugh. Love to see how I can improve/fix things. All of that is worth getting up in the morning to me. But Fibromyalga is slowing eating all of that. After 8 to 10 hours of sleep, I wake dead tired and sleepy, not sure if I can walk. It's debilitating.
The worst side effect for me is the sleeping and being tired. That means no art. No cooking and asking friends over. When you make plans, you pray you'll be able you can actually go.
Enough whining and complaining from me. I can be depressing on my time, not yours.
If you follow my blog, thank you. I appreciate each and every one of you. Please know that if I haven't posted for a few days, it's not because I'm on vacation having fun. xoxxxx
3 comments:
hang in there - praying for quick recovery and back on your feet real soon! you are not allowed to be feeling down and unwell. seriously, hope you feel much, much better really soon!
Thanks so much Alice. I'm working on it. I'm tired of resting. LOL
I understand completely. I was diagnosed almost ten years ago and I still have trouble accepting that my life has changed. I fight the pain and fatigue most days, which only makes them worse. I have promised myself that I am for sure going to bed for a couple of days after quilt guild tomorrow. I'm practically lame at this point. Can stand for only a few minutes at a time. I hope you're having a good day.
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